Thursday, February 16, 2012

He knows the way

This journey on the unknown highway of FASD has been an unplanned adventure: it wasn’t written on my heart or in my journals.

I simply do not understand FASD.

This Spectrum Disability encompasses so many variables it is mind boggling.  While there is much information on what FASD is, how to prevent FASD, statistics scary enough to chill the heart of every parent... there really isn't much at all written along the lines of hope for a parent of a child with FASD.

Truth is a parent is always a parent, no matter what age their child has matured to. A parent always looks at their child as their child.  For parents who are raising children with FASD the truth goes even deeper: odds are very high that our FASD child will remain somewhat child like their entire life, not figuratively in a mothers heart, but literally so.

Leading child “experts” such as Michael Thompson, James Dobson, Kevin Leman, Gary Ezzo -- not one has written a guide for the parent of a child with FASD. Search Amazon and find 191 topics on raising boys, but not one of them reaches the parent of a child with FASD.

Our children with these Spectrum Disorders do not fit the mold. Any mold. They are unique like no other.

One day they love on you as if you hung the moon; the next day they accuse you of child abuse. They joyfully comply with the boundaries you have set in the morning, only to have a raging unexplainable screaming melt-down over the very same rule in the evening. They adore and love their siblings, then an hour later blindside them across the back with a giant stick. Whatever I did yesterday that kept them calm, even keeled and is sending them into a frenzy.

I am not on a quest for Nirvana yet I have learned about Qigong, castor oil, flower essence and other Eastern medicinal treatments you may not even know existed.  I have charted our eating habits meticulously. I have eliminated all things processed, genetically modified and unnatural.  I have tracked the phases of the moon closer than my own monthly cycle.  I check the barometric pressure and weather forecast every night before bed.

There is no limit to my self education when it comes to my child's well being and training. I will do whatever I can humanly do as his mother to give my child opportunity to reach his full potential.  Yet, that is my great unknown: what is his full potential?  That not knowing if he will mentally even mature to age 16 is something that can worry me to death. Literally if I allow it.

And so I rest my passion, which is at times all consuming and utterly draining, I take my fears of the unknown,  the frightening FASD statistics that tear at my soul and I lay them at the feet of throne of God, and with all my heart I cry out for wisdom.  With tears flowing I remind God that He promised in Job 23 that even when I am confused and when God does not appear to be near -- yes, He does know the way that my child will take. And my soul finds rest in this hope: the journey is His, not mine.

Slowly I peel my clinched whitened fingers off the soul my child.  I do this often, if not daily. It is not a one time release, for I habitually take back what I have given. So continually I am learning, this place of finding rest is one where I must return to.  My soul will only keep this rest as I trust in the promise: He knows the way that my son will take.


  1. Blessings for writing this... found you through Twitter, as I continue to look for support in what feels like an isolated journey at times. We're parenting two children who are exposed, one with some pronounced challenges, and learning that each and every day is about laying him down before the throne of grace, knowing God is here, in the middle of it. I've written about this lots, but shut things down for personal reasons, working my way up to putting it out there again. Bless you as you raise your family.

  2. Love you Laurie...I wish that we could have conversations about these things over coffee...face to face.

  3. Tammy, thank you for your thoughts. I know this is long delayed, I'm sorry for not replying sooner. My browser wouldn't let me reply to posts. For 2 months. Crazy frustrating, but I think its finally fixed!